My first post: My Dystonia Story

Hello, its nice to meet you. My name is Maggie and I have Generalized Dystonia. At age 16 I was diagnosed and at 19 dismissed by my Doctor for having a Conversion Disorder. Now at 23 I am going to a new Neurologist who says it is definitely not a Conversion Disorder. He believes I do have Dystonia and is sending me to a Movement disorder specialist for testing. Everyone has a different Dystonia story . Most go through periods of doctors not listening. Their symptoms can be different and they can react differently to medications. For me Dystonia is intermittent contractions of the muscles in my body. During these periods I cannot move those areas. It can be in just one limb or it can go all over my body. These periods can last anywhere from a few minutes to days. I also have a tremor in my hands and feet. Over the years I have progressively gotten worse. As an example to how people react differently to medications with this disorder I want to share my experience. I took some very common medications for this issue as a teenager and it caused me to lose all control over my muscle to the point of being unable to breathe. This was what resulted in me being labeled with a Conversion Disorder. My current doctor said the meds I was on are known for causing those types of symptoms. This led him to be certain it was Dystonia. I am unsure of how this blog will go, but I want to share my Dystonia Story. In general I want this blog to be upbeat, but sometimes there might be negative tones. I want to show the ups and downs of having a Movement Disorder. Thanks for Reading!